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Huntington's Disease Caregiving

What Is A Caregiver?
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What Is A Caregiver?
What Is An HD Caregiver?
Caregiving For A Spouse
Caregivers Bill of Rights
Cargiver~Knowledge
Helping Your Loved One
Your pHD Is Unique!
About Huntington's Disease
HD Articles of Interest
HD Guidebooks
Post Emergency Info
Early/ Early Intermediate Stages
Late Intermediate Stage
Swallowing Diagnostic
Speech & Language in HD
Swallowing Safety in HD
Early Advanced Stage
Swallowing/Diet
Swallowing Difficulties~Physician's Guide
Warning Signs of Swallowing Problems
Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
Texture & Consistency/Thining & Thickening Foods
Drinks/Shakes Recipes
Adaptive Equipment-Mealtime Help
Food Thickners
What Is A Feeding Tube?
When To Consider A Feeding Tube
Feeding Tube Decision in HD
Feeding Tube Resources
Advanced Stage
Late Stage Care
Commom Problems Encountered~Hospice Care
Temporary List of Resources
Personality Issues
Symptoms
Legal Issues
Disability Issues
At Home Care
Outside Care
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Miller Messages
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What is a caregiver?
 
At a time when hospitals are releasing patients earlier, the elderly are living longer, and people are living with many chronic illnesses, more family members and friends are caring for loved ones at home.
 
Often, people find themselves having to perform new and unfamiliar tasks. These may include giving medicines, helping with personal care, assisting with meals, and performing medical and nursing procedures. 
 
A "family caregiver" is anyone who provides any type of physical and/or emotional care for an ill or disabled loved one at home. Sometimes, "family" is whoever shows up to help.
 
There are different types of family caregivers. Some caregivers are parents of children with physical, mental, or emotional illness.
 
Some are adult children of aging and frail parents who can no longer care for themselves. Others are spouses, life-partners, family members, neighbors or friends, caring for loved ones suffering from an illness or disability.

Regardless of how you became a caregiver, you are about to take on a new role for which you may not feel prepared.
 
It is normal for you to feel nervous or overwhelmed about what is expected of you.
 
You may experience a number of mixed emotions including anxiety, anger, and sadness. At the same time, you'll probably feel the desire to care for your loved one as best as you can.
 
This site is provided to help you feel less alone and overwhelmed, and to aid you in becoming the best caregiver you can be. This means helping you get information, recognize when you need help, ask for and accept assistance from others, and take care of yourself.
 
 
Source:
Department of Pain Medicine
and Palliative Care
Beth Israel Medical Center, NY